Cromos Pharma’s Agnieszka Milewska-Kranc Leads the Way in EU’s Rare Disease Advocacy

In accordance with the Decision of the European Parliament and the Council of the EU establishing the Second Program of Action in the Field of Health, the EU Council Recommendation on Action in the Field of Rare Diseases was issued. This recommendation urges member states to establish and implement plans for rare diseases.

The National Plan for Rare Diseases will be instrumental in ensuring sustainable implementation of health policies that cater to the needs of patients with rare diseases, introducing systemic solutions to their health and social challenges.

We are pleased to announce that Agnieszka Milewska-Kranc, Cromos Pharma’s Head for Poland, is a vital member of this working group. On June 5, 2024, she participated in the meeting of the Parliamentary Group for Rare Diseases and the Parliamentary Group for Children, chaired by Prof. Dr. hab. n. med. Alicja Chybicka.

The meeting was dedicated to hearing representatives of patient organizations and discussing the most urgent problems and needs of people with rare diseases. Topics included access to diagnosis, treatment, rehabilitation, care, education, legal support, and social services.

Key stakeholders such as representatives from the Ministry of Health, the Ministry of Education, the Ministry of Family, Labor and Social Policy, the National Health Fund, and AOTMiT also attended the meeting.